top of page
Information for Those Affected
​Depending on the severity, a congenital heart defect represents a lifelong challenge for those affected and their relatives. At every stage of life, they are concerned with issues such as treatment options, athletic resilience, sexuality, career choice or family planning. These questions often go beyond medical aspects and are nevertheless of great importance.
Children
Your child was born with a heart defect. What are you currently concerned about? The first few years with a baby are full of joy, but also challenges, especially if there is an illness. Many questions arise - not only with regard to your child's health. So far, you have decided everything for your baby, but over time it becomes more and more important how you prepare your child for a self-determined life.
Parent and Patient Organizations
Doctors and Centers
Teenagers
You were born with a heart defect. What are you dealing with right now? Becoming an adult is an exciting and challenging time. There are many questions to ask - including those related to your illness. So far, your parents have taken care of you and soon you will be responsible for yourself.
Patient Organizations
Doctors and Centers
Adults
You were born with a heart defect and probably already know a lot about your condition. Yet, there are still many topics that concern you. You may have adapted to having a “repaired” heart, but what does this mean for physical activity, your sex life, or your ability to have children despite your heart condition? These are just a few of the possible questions.
Patient Organizations
Doctors and Centers
Useful Resources
Patient Card
The patient card for people with congenital heart defects provides essential information at a glance in case of emergency and is available in a credit card format. It is issued by Swiss Heart Centers and can also be ordered directly from the secretariat.
E-mail:
Mobile:
ACHD Clinic Directory
This publication helps find emergency care for congenital heart defects while traveling, with contact information for ACHD programs in the United States and internationally.
Patient Information
Brochures
Brochures and publications from our partner, the Swiss Heart Foundation, were developed in collaboration with experts and provide you with the most important information in a nutshell.
Heart Stories
Our heart stories give you an insight into the experiences, challenges and successes of people who manage their lives despite being diagnosed with congenital heart defects.
bottom of page